J HUGHES1,2,3, M TIONG1,4, K HURST5, S MCDONALD5, D DUFF1,6
1ANZDATA Aboriginal and Torres Strait Islander Health Working Group, Adelaide, Australia, 2Menzies School of Health Research – Charles Darwin University, Casuarina, Australia, 3Royal Darwin Hospital, Tiwi, Australia, 4Royal Melbourne Hospital, Parkville, Australia, 5Australia & New Zealand Dialysis & Transplant (ANZDATA) Registry, Adelaide, Australia, 6Institute for Urban Indigenous Health, Windsor, Australia
Aim: To describe the development of an ANZDATA infographic to assist the reporting of Aboriginal and Torres Strait Islander People’s data.
Background: The ANZDATA Aboriginal and Torres Strait Islander Health Working Group undertook a review of how data is collected and stored by ANZDATA. After consultation with patient-data contributors, a need to improve data sovereignty and timely information distribution was identified. Visual communication was chosen as a preferred communication style and an infographic was subsequently developed to respond to these goals.
Methods: Key outcomes reported within the ANZDATA Annual Report (Aboriginal and Torres Strait Islander Health Chapter) were identified. Illustrative icons were developed and licenced for ongoing use with annual iterations, to allow consistent reporting and to facilitate year-to-year comparisons. Feedback from patient contributors and technical experts was sought to ensure that selected data points were stakeholder relevant and that data integrity was preserved.
Results: A summary infographic based on the 2018 ANZDATA Annual Report (Data to 2017) was published in June 2019 (3 months after the report was publicly released). The infographic was disseminated via the ANZDATA website and accompanied by an explanatory video. An updated iteration based on the 2019 Annual Report (Data to 2018) was published in July 2020. The development of future iterations will be integrated into the ANZDATA annual reporting processes, to minimise delay between data collation and dissemination.
Conclusions: The ANZDATA summary infographic of Aboriginal and Torres Strait Islander People’s data was created to facilitate the ongoing and timely distribution of key information, in a format that is driven by data contributors and designed for use by patients, clinicians and other key stakeholders.
Dr Mark Tiong completed his RACP fellowship in nephrology in 2019 and is currently undertaking his PhD in the area of CKD-MBD at The Royal Melbourne Hospital and The University of Melbourne. He is also interested in Aboriginal and Torres Strait Islander health, having previously worked for the Central Australian Health Service in Alice Springs, and is also a current member of the ANZDATA Aboriginal and Torres Strait Islander Health Working Group.